I had the biopsy Friday and I am happy to report NO clotting problems...or bleeding problems!!!! I was SO relieved. The night of the procedure I was home and scared to even sleep without anticoagulation so I stayed up until I could use Fragmin again.
The most worrisome part of the whole thing was being off anticoagulation for a day.
We all know that more knowledge needs to get out there about APS/Hughes...but I was shocked at how I was poo-poo'd by several nurses/doctors about APS. Most asked me what it was. Another saw hypercoaguable and said Oh...you have Factor V Leiden. I said yes and Antiphospholipid Syndrome. He said well I am just putting down Factor V Leiden on your papers. Ugh.
If someone has diabetes and coronary heart disease...are you just going to put one of them down??????
The experience of the biospy itself had some rotten parts which I will be addressing with the proper people on Monday. Results will be in probably Tuesday or Wednesday.
At any rate...I feel like I need to take a HUGE poster and books with me to distribute to nurses and doctors each time I have to go to the hospital. Onward we go.
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pumpkincake
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I echo your concerns about fiddeling with INR medication. Over here in the US I have been fired from a GP's practice because I refused to have a colonoscopy. My GP did not believe APS to be a "real" disease and assured me that my blood coagulation level would be easily within range even though I would be off warfarin for a few days. At this point I reminded her I was allergic to heprin, lovanox and possibly fragmin. She responded with, "Oh, you're just making excuses."
I then tried to explain that for me, personally, the cost/benefit analysis of this procedure did not look good. I got (and get) twice yearly stool samples, which have all been negative for anything obviously scary. But she again, impatiently dismissed my concerns and said that she was not going to allow me and my stubbornness to "ruin" her statistical ratings for the number of her patients who had undergone this preventive procedure.
Glad the biopsy went well, I too dont like it & get nervous when taken off warfarin its only normal for us to feel that way.
As for the medical proffesional ........I think you all know all too well how I feel about that!
I actually do take my leaflets & posters around with me everywhere & give them out to the hospitals I'm in, docs even shops/chemists in towns......you know what has never been said to me yet?..........it's ok we already have some!!!! it would be so nice to acually hear that!!
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its only normal for us to feel that way. 
Gastroparesis (slow stomach emptying with pain)
Follow up on appointment with Rheuatologist on Friday 27 Jan
Does anyone else feel like this
Dream run has had a hiccup.
How do we get doctors to believe that moving blood clots can be felt?
