Hidden12 years ago

Hi there

Do you get white fingers and toes? Is the pain similar to pins and needles wearing off? I suffer wuth Raynaud's and that means i have poor circulation in my extremities, I lose the circulation in my fingers by holding something below room temperature - even in the summer if i hold the steering wheel when the car has been parked in the shade it can happen. Raynauds has been linked to APS and Lupus - does that sound familiar?

raynauds.org.uk/raynauds/ra...

Good luck - I hope you get an answer soon.

Take care

Tx

Stannington-lad in reply to Hidden12 years ago

When I have the pain in my fingers and they start to curl, I straighten my finger (which is uncomfortable) and my finger goes white. Some time I find it hard to walk with the pain.

Since I was diagnosed with APS my body seems to be deteriorating. I used to be a lot fitter than this 2 years ago, I used to and take the dog for a walk and every thing else.

I seem to get tired rather easy these days with tiredness and fatigue and now with all aches and pains, continuous Migraines and other things. I am falling to peaces.

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jessielou12 years ago

Hi terry

sorry you having a tough time at the moment.

My gp thinks i have raynauds too. Sympathise with the pain you suffering, look into link tasch has posted!!!

You really need to keep pushing gp and specialist if you got one. Sounds like you need more control off symptoms. Only by pushing the medical teams will you get any help. I think we all feel low with aps and everything seems so hard, but all we can do is keep fighting.

You know your body not right!!!

Also you are not alone!!

I hope you feelin better soon!!

Take care gentle hugs sheena xxxxx jessielou xxxxx

Stella12 years ago

Hi Terry, I too have Raynaud's but from what you're saying. I think your problem could be more than this. When I was first diagnosed with A PLS I was having bad migraines and before that years of joint pains. For a long time I was treated only with aspirin and it was only when I went on to anticoagulant therapy that my symptoms abated. By the time I was referred to the anticoagulant clinic I had lost a lot of feeling in my left leg which is permanent. If you are not on warfarin or something similar, then I suggest you talk to your GP promptly. Aspirin certainly wasn't enough for me. Since being on anticoagulants I have been able to get some sort of life back, albeit limited. I get the occasional headache but no migraines and have not had joint pains for years. Hope this helps, Stella

paddyandlin12 years ago

Hi Terry,

This may be raynaurds as the other people have suggested but it also could be a symptom of your APS, I would talk to your GP about this failing that if you have a consultant talk to them because you could be put on a drug called Hydroxychloroquine this is used in a number of paitents to help with joint pain.

en.wikipedia.org/wiki/Hydro...

But please do not take our word for it go to the docs see what they say

paddy

Gadgets12 years ago

HI Stannington Lad

I also have problems but different to yours.

My little left toe is sore but cant see anything wrong with it! My left hand has some fairly large white "calcium looking" lumps which are getting worse. I have a very sharp pain going down the inside of my middle finger which is just like a hot needle. (this comes for weeks and goes for weeks)

I am seeing my consultant at St T in 2 weeks and will ask again as last year I was told to keep eye on it but my GP refused to refer for surgery until unable to use my left hand, risky etc and thats fair enough.

I take 2 x Hydrocloxychorline (Plaquenil) tablets which held with joint bone pains and fatigue. (Although I feel more tired each year)

I had a small stroke in my left arm. 5 years ago.

Hope you feel better soon

Cheers

Garry

taffydaffy12 years ago

Hi

I to have pain in my fingers and toes due to osteoarthritis

Stannington-lad in reply to taffydaffy12 years ago

Hi Taffydaffy

All my Bloods have come back normal. GP said it could be ware & Tare.

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taffydaffy in reply to Stannington-lad12 years ago

Yes that's what my doc told me it's Osteo the pains get worse in the cold weather it's our age babe lol old age doesn't come alone x

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