A very worrying reply from St Thomas' about the discharge of hundreds of patients.
I copy verbatim the body of a a letter I have received from St Thomas' in reply my December email to them about my discharge letter ..
Dear Mr xxxxx
Thank you for your email
My letter to you about why we are finding it necessary to discharge many hundreds of patients from the lupus unit was I hope quite clear. I have carefully reviewed your notes and investigations which you rightly say extend back over many years. The condition that you have is well known although somewhat controversial in its management. It is especially important for patients such as yourself to have contact with a local hospital. Clearly your blood tests are being monitored locally and you should establish a liaison with the haematology department performing this test. If you were to have an abrupt bleed as a result of warfarin treatment or to have some other problem linked to clotting you would need to be seen with some urgency in your local hospital. There is no case for your coming all the way to St Thomas from Devon if you have no symptoms. The anti-phospholipid syndrome can be perfectly well looked after by any haematology department since it requires only monitoring of the warfarin and adjustments of dose as necessary. Given our situation and the need to discharge many hundreds of patients so that new patients can have access to our services I cannot make an exception for you.
I am sympathetic but I hope you understand our situation.
I would not normally dream of publishing the contents of a letter between hospital and patient but as I am the patient and this issue is so important to us, I think I am justified in doing so. I have not named the person signing, he is not a name I recognise from anywhere and is not one of those we are familiar with as sympathetic.
Though there are many issues that I would argue with,I will leave further comment for now because I am absolutely fuming about how they are treating us, not just me but many hundreds of us, far worse numbers than I ever expected.