lovemyheart11 years ago

Thank you APSnotFab. The hemo actually said that too that its a big deal to try and stop the bleeding because i have vonwillebrands type 2. So i asked why i should be on it and he said hes more afraid id have another stroke. Yet im afraid of it.

lovemyheart11 years ago

I agree with you. It seems so "new" over here. Im going to speak to my rheumatologist and my heart dr too. I have to say this community has been such a blessing to me, i have learned a lot...Teresa

Salty11 years ago

Is there a reason he doesn't want to use warfarin?

lovemyheart in reply to Salty11 years ago

Hi Salty...he cant use warfarin, coumadin or heparin because i hemorrhaged on plavix and had bleeding issues with 325mg of aspirin. But now the problem is the 85mg of aspirin im on has caused me terrible problems now with my joints and my teeth and gums. He feels the xarelto would be better for me. I dont have an md after my name but i read and im leery of it. Im afraid of bleeding on it

Reply (0)Report

Hjohnson11 years ago

You need to make sure your Inr doesn't get too high or you will bleed internally. After passing a Pulmonary Embollism and spending 5 days in the hospital a week later I became very ill. i couldn't catch my breath even though I was on 4 liters of oxygen. My PT/INR was at 8 and I had Pericardio Infusion w/ tempenade.. They had to drain 1500cc of blood from the sack around my heart it took 2 days to do this. My kidneys shut down and I was in the hospital for 13 days trying to get my INR to be therapeutic . So you need to be very careful with it. It should sit between 2-3 so you don't clot.

luisal11 years ago

Hi, I am new to the blog and need your advice on the INR counting. I was diagnosed three years ago with APS. Since then I was taking a daily dose of 81 mg. of Aspirin. Recently as APS flared my rheumatologist add to treatment 1 daily dose of 75 mgr. of Plavix. Most of the symptoms I had been experiencing for the past many years (in particular headaches) have been relieved. I am suppose to be taking Plavix for six months but reading this blog I have realized that my doctor should have ordered periodical counts of INR which he did not. According to your experience, how frequently should I be tested? Thanks so much for your help.

luisal11 years ago

Many thanks for your advice APsnotFab. I am learning so much from all of you guys! Keep posting on your experience. Unfortunately I don't have much help at hand in a small country as Venezuela where I guess there are no real specialists on APS.