When you had a clot could you feel it... - Hughes Syndrome A...
When you had a clot could you feel it move and did doctors say it is impossible to feel clots moving?
paddyandlin63 VotersPlease select one:
I felt my first clot moving very clearly and as it was my 1st clot it wasnt until a day later that i relalized what it had been. When i mentioned it to the consultant he looked at the junior doctot as if to say 'heres another one' and speaking to me very patronisingly told me ifs impossible to feel a clot moving. I havent mentioned it since for that reason
Hi Margaretjo
Isn't it sad when doctor patronize their patients regarding clots? My husband has been told repeatedly to go to the ER when he has chest pains, but he refuses to go when he knows the pain is from a clot moving thru his lungs. Why go when they won't listen?
I see the percentage is growing of those who feel clots moving but keep being told by doctors that this is impossible. How do we inform doctors - ER doctors, General Practioners, etc., - that this does happen? How do we get them to accept that this is a reality?
My husband has been sent home from the ER with a diagnosis of bronchitis 5 years ago, and a migraine last year that was in fact a TIA caused by a clot, resulting in an aneurysm building pressure until it ruptured & he lost almost 50% of his blood, How do we get doctors to listen when we come in saying we felt a clot moving & they say it's impossible, giving a false diagnosis which could cause death? There has to be a way to inform them.
i frankly would die before going to an ER again. patronizing doesn't begin to describe it.
the only hope in that case is when the doctors are young because then at least they know what APLS is.
When I ask drs "Do you know what APLS is?" and they say yes, I ask them to tell me what they think it is. They never know. sigh
I agree that younger doctors know what APS is, sometimes, & I do stress sometimes. I know all doctors have their specialties, but they should also have some basic knowledge in things like this.
OMG!! I remember the week I had to fly and give a presentation I had a weird feeling in my calf, some pressure, small spasms and dull pain...I told my boss that I didnt think I should fly that I might be forming a clot- He insisted- So I went to the ER for a Dopler- no clot so I took extra warfarin and asprin and insisted I stay the night and elevated my leg during the night- as soon as I got back home I scheduled an appointment with my vascular Doctor and sure enough I had a DVT in the popatiel vein! He said it was a miracle I was alive!
I have had 3 clots. One was a DVT - DEEP VEIN - that one I did not feel because it was in a deep vein BUT I had other symptoms. The other 2 were superficial - and YES - those I felt AND so could my doctor.
debi in FL W APS
I not only felt the one in my thigh manifesting itself with a pain similar to a "stitch", I was able to distinctly feel the fluids in that vein spurting past the clot under pressure! This was in my left thigh. The stitch pain moved lower and lower from day to day. I told my then GP but was advised not to be ridiculous as I was too young to have a blood clot. I had just turned 40! Needless to say, it was only 3 years later that the clot was officially acknowledged after my legs / thighs were scanned. I have to wear compression stockings for life as my left ankle swells up horribly without them.
I didn't feel the dvt moving out of the vein - it was in my jugular vein in neck, it was fixed, but most times I swallowed I could feel it move within my neck. Specialist told me that it was impossible.
