Manofmendip11 years ago

Hello Paleosooze.

Thank you for your question. It would not be appropriate for us to advise you on dosing, as we are not qualified to do so. Your GP should know the correct dose to start you on.

Good luck and please keep us informed as to your progress.

Very best wishes.

Dave

Paleosooze11 years ago

Fair enough! Thanks for your best wishes Dave. Seen GP. He didn't know anything about hughes but as soon as I mentioned my problems with aspirin, he suggested clopidogrel he was very helpful generally and had quite a lot to say about the consultant having found that I have a general low grade autoimmunity in addition to my 3 specific conditions and he explained how rubbish this would make me feel ie like I have constant flu. It's all been such a huge relief to finally be medically 'recognised'.

Thanks for your support

Susie

MaryFAdministrator in reply to Paleosooze11 years ago

If you are able to give him details of the charity at the next visit and also some papers off our HSF site regarding the condition and you feel he gets very interested in it - please come back to me in a private message - and we can think of adding him to our data base of professionals who understand the condition. For instance our paediatrician , our new one is absolutely lovely with my children regarding suspected hughes and defined systemic lupus... and reads the small print and has read avidly everything I have given him. Months down the line he was delighted to be asked to be on the forthcoming data base.

Also this article is good also: telegraph.co.uk/health/4400...

Mary F x

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Salty11 years ago

The dose of plavix is very standard--75 mg daily. Plavix is the brand form of clopidogrel. For me, it is clearly more effective than the generic form and Professor Hughes told me that has been true for several APS patients.

Paleosooze11 years ago

That's interesting Salty. My GP has put me on the generic. He doesn't know anything about Hughes and I think I'm probably just going to have to give it a while and see if I have any improvements and if not I intend to see Prof K privately. Don't know how long to give it though before assessing whether it's helped or not!